Still waiting...

A friend text me and said she had been watching my blog for an update on Ava (thanks, Tracey! :) ).  I sometimes forget that my blog readers are not all on Facebook where I update with small things here and there.  So let me update on Ava's appointment that I talked about in the last post.

The appointment went well.  We really liked the doctor.  She listened to what we had to say and worked with us to talk through possible scenarios.  Overall, the appointment was good...except that the reality that we may never "know" what is happening with our sweet girl.  The doctor didn't really think that she has Fragile X, but there are enough symptoms that warrant testing for it.  There are a couple of other genetic disorders that she has symptoms of, so we are starting with testing for those things.  If they all come back negative, then we will move to whole exome testing.  And we can't start any testing until we get insurance approval, which is where we are right now....waiting on insurance!
One really great blessing is that we found out that the testing that runs $10K-$15K can be done for about $300 out of pocket with some funding that is available since this is all fairly new research and testing as things go in the medical world.

We appreciate all of the prayers and those following her story!  I have to say the whole experience has made me press in closer to our Maker and listen for what Ava is created for in order to equip her in the absolute best way possible for what God has for her!  Because no test results will change one thing that we already know, she is made exactly how she needs to be made in order to do what God has for her to do for His Kingdom and to bring Him the most possible glory!